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Join the CLRC Professional Panel!
The CLRC is seeking attorneys to join its Professional Panel and help people navigate their cancer-related legal concerns.  A volunteer attorney can make the difference!  For more
information, click here.
Support the CLRC! 
Make an online donation, by
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Sign up to volunteer! 
If you are interested in helping out in the CLRC office or in attending events as a representative of the CLRC, please call us at (866) 843-2572 or click here to complete a volunteer application.


 July 2011 Events      

For information about these events, contact us at 866-THE-CLRC (866-843-2572) or

To see the entire 2011 Events Calendar,
click here 

"Cancer and the Law"
July 12, 2011
9:00 a.m. - 10:30 a.m. PST

Free Teleconference/Webinar
Presented by the CLRC

To register, click here:

"Understanding Health Care Reform: Overview of the Affordable Care Act"
July 14, 2011
9:00 a.m. - 10:30 a.m. PST

Free teleconference/webinar
Presented by the CLRC
To register, click here:

"Cáncer y la ley"
July 20 , 2011
5:00 p.m. - 6:30 p.m. PST/   8:00 p.m. - 9:30 p.m. EST

Teleconferencia gratis
Para registrarse, haga click aqui:

The CLRC Presents:
Casino Angeleno

Saturday, July 23, 2011
6:00 p.m. - 10:30 p.m.

Petersen Automotive Museum
Los Angeles, CA
To buy tickets or make a donation, click here:

Cancer Support Community - Pasadena
"Frankly Speaking About the Cost of Cancer Care" Seminar
July 26, 2011

6:30 p.m. - 8:00 p.m. PST
Pasadena, CA
For more information, call:    (626) 796-1083

"Medicare Basics "
July 27 , 2011
5:00 p.m. - 6:30 p.m. PST/   8:00 p.m. - 9:30 p.m. EST

Free teleconference/webinar
Presented by the CLRC
To register, click here:

Cancer and Careers: Ask the Experts - Legal and Career Advice Teleconference
July 27, 2011
9:00pm EST/6:00pm PST

Join us to ask questions and get answers from legal expert and CLRC Director, Joanna Morales, Esq.
To register, click here:

American Brain Tumor Association
Patient and Family Meeting
July 30, 2011

Marriott Lincolnshire Resort
Chicago, IL
For more information, visit:


 July 6, 2011 
 National, Volume XIV 

Dear Friend,

In this month's issue of the Cancer Legal Resource Center Chronicle you will find:

Best regards,
Joanna L. Morales, Esq. 
Director, Cancer Legal Resource Center

What's New at the CLRC!

Playing CardsTickets are still available for CLRC's Casino Angeleno on Saturday, July 23, 2011!  The CLRC's summer casino fundraising event is back by popular demand!  Join us on the the roof top deck of the Petersen Automotive Museum for a fun-filled summer night of guilt-free gaming, food, cocktails, music, and fabulous prizes. To purchase tickets, visit

2011 Conference Logo VerticalThere's still time to register for our remaining 2011 Cancer Rights Conferences in Washington, D.C. on September 23, 2011, and Ann Arbor, MI on October 21, 2011. Join the CLRC for these FREE events that will provide patients, survivors, caregivers, advocates, navigators, and health care professionals with valuable information about cancer-related legal issues.  FREE continuing education credit for qualifying nurses, social workers, and attorneys!  For more information and to register online, visit

CAC Ask the Experts Series Logo 3

Meet CLRC Director, Joanna Morales, Esq. on Cancer and Careers "Ask the Experts - Legal and Career Advice" teleconference on Wednesday, July 20th - 6:00 p.m. PST.  To view the complete teleconference schedule and register for this free event, click here.

The ACCESS for LA Coalition is pleased to invite you and your colleagues to the “Research to Reform: A Plan to Eradicate Cancer in California" community forum on Tuesday, August 2, 2011.  This free event will include a discussion of issues surrounding access to cancer-related services in the greater Los Angeles area, the California Cancer Research Act (CCRA), health care reform, and current efforts in basic and population research.  The forum will be held from 8:00am to 12:00pm at The California Endowment.
Please register at:

Mass MutualJoin CLRC for a free webinar/teleconference on "Cancer and the Law" - Tuesday, September 13, 2011, at 5pm PST/8pm EST, sponsored by MassMutual.  Learn about the most common cancer-related legal issues for patients and survivors, including: health insurance options; employment rights and reasonable accomodations in the workplace; taking time off work; and access to disability insurance and government benefits, such as Medicare, Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI).  Participate by telephone or online.  To register for this free seminar, click here:

Lymphoma Research Foundation LogoCLRC is a proud partner of the 16th Annual Eduational Forum on Lymphoma, September 30, 2011 – October 2, 2011, in Brooklyn, New York. The North American Educational Forum on Lymphoma is the most comprehensive lymphoma-specific educational conference in the U.S., including disesase-specific breakout sessions, expert panel presentations, treatment updates and networking opportunities. For more information, visit or click here to view the event brochure.

Talk About Health LogoCLRC Partners with The CLRC recently partnered with, a cancer question and answer web site that provides personalized, helpful, and accurate health answers. The CLRC looks forward to sharing free information and resources on cancer-related legal issues on

Chicago Cancer Rights Conference in Review 
By Angelica Corral, Communications Coordinator

Audience_HRC Session 2On Friday, June 24, 2011, the CLRC hosted its long anticipated Chicago Cancer Rights Conference.  Despite this being just our second year in the Chicago area, over 325 people from from 21 different states registered for the Cancer Rights Conference—a significant increase compared to last year's 200 registrations from 10 states!  Patients, caregivers, survivors, health care professionals, attorneys, an administrative law judge, consultants, and advocates all joined us to learn about cancer-related legal issues and resources.

Monica Bryant Esq. and Shawn Kravich Esq. answer questionsNumbers aside, our greatest success in Chicago was our satisfied conference attendees—many of whom were empowered to better advocate for themselves or share their knowledge with those who most need access to information and resources on cancer-related legal issues.

A few attendees nicely summed up why we are committed to hosting free Cancer Rights Conferences nationwide:

“The more information we have, the better we are able to help our patients. Cancer affects all of us!”

“This program was awesome. Everything presented was valuable information. As a cancer survivor it is comforting to know there is someone out there looking out for us. Thank you so much CLRC for all you do. You make a difference in our lives!”

The entire day was outstanding! The efforts put forth by a small group of individuals to bring so much knowledge to this large group shows what a difference a few dedicated people can make. I was inspired and privileged to have been able to be part of this special day. I will use these resources every day as a nurse case manager. Thank you! I look forward to future presentations.”

For those of you who were able to attend, we hope that you also felt that the day was worthwhile.  If you were not able to join us in Chicago, please consider joining us in Washington, DC on September 23rd, or Ann Arbor, MI on October 21st.  Registration and more information about these next two Conferences can be found at


Announcing the Access to Preventative Care Survey 

By Anya Prince, Esq., CLRC Skadden Fellow

stethoscopeRecent increases in the use of genetic testing in the cancer realm have helped many individuals to understand whether they have a heightened risk of developing the disease in the future. This knowledge helps individuals to create a plan for preventative care to decrease their risk of developing cancer. However, the goals and promises of genetic testing will not be met if individuals cannot gain access to preventative services after learning of a heightened risk. The laws governing genetic information are recent and are often attempting to catch up to rapidly changing science.

For this reason, the Cancer Legal Resource Center (CLRC) and Facing Our Risk of Cancer Empowered (FORCE) are conducting a survey about individuals’ experiences with insurance coverage of preventative services, specifically for individuals with a genetic predisposition for cancer. The goal of the survey is to find any gaps in the system that make it difficult for individuals with a genetic predisposition for cancer to gain access to preventative care. Based on the results, we plan to create strategies for changes to the legal landscape to ensure the best access to preventative care for individuals.

This survey is intended to gather information about access to preventative services given a genetic predisposition to, or family history of, cancer. It is not seeking information about insurance coverage of treatment after a cancer diagnosis.

We would like to hear about your experience with insurance coverage, including private insurance, employer-sponsored health plans, Medicare, and Medicaid in the preventative care context. We are interested in learning about your experience in order to ensure that individuals with a genetic predisposition for cancer receive the best possible care.

To complete the survey, please visit:

Health Care Reform Update -
The ACA and External Medical Appeals: One Step Forward, Two Steps Back?

By Monica Fawzy Bryant, Esq., CLRC Midwest Regional Director

When the Patient Protection and Affordable Care Act (ACA) was signed on March 23, 2010, it included provisions that would strengthen a consumer’s right to appeal a health insurance company’s decision.  Insurance companies were now going to be required to implement an effective internal appeals process and abide by a more standardized external appeals process based on the National Association of Insurance Commissioner’s (NAIC) Uniform Model Act.  The types of decisions that were going to be appealable would include: a claim denial based on the fact that a drug was being used for an off-label purpose or if a treatment was considered experimental.  

On June 23, 2011, the U.S. Department of Health and Human Services issued the final rules on external medical review that some see as taking two steps back from the intent in the ACA.  For any claim that has not been initiated before September 20, 2011, new rules will apply.

The new rules limit the types of claims that can now be appealed through external medical review.  Now only claims that involve medical judgment or a rescission of coverage can be appealed.  This means that patients will not be able to appeal when the dispute is based on mistakes involving billing coding or disagreements about if the patient should be allowed to see a specialist outside of the network.  However, the medical judgment standard can be broad.  For example, the HHS rules describe the following instances when external medical review of an adverse benefit determination is based on medical judgment:

Inpatient vs. outpatient care; treatment by a specialist; a plan’s general exclusion of an item or service (e.g., mental health services); the frequency, method, or treatment or setting for a recommended preventative service; etc.  

Other changes to the appeals process included changing the time frame for plans and issuers to make determinations from 24 hours to 72 hours in urgent care cases and shortened the time period for patients to file a complaint to two months from four.

Only time will tell if these changes will significantly impact patients’ ability to appeal adverse insurance determinations.  
Updates For Health Care Professionals

medical-symbol-chromeThe CLRC  is committed to providing health care professionals with useful information about cancer-related legal issues that many of their patients face as a result of a cancer diagnosis. While we recognize that it should not take legal resources to access health care, understand insurance options, or preserve one’s job, it frequently does. When information is easily accessible,  we believe the quality of outcomes for patient survivorship improves. 

Hard Copies Now Available for Order! The HCP Maual - A Legal Resource Guide for Oncology Health Care Professionals - 2nd Edition (2011). Spiral bound hard copies of The HCP Manual are available for $5, payable by check or credit card. To order a hard copy of The HCP Manual, download the order form by clicking here: The CLRC thanks Winston & Strawn LLP for generously donating printing services for this project.

HCP Survey:
In an attempt to strengthen our educational resources for the cancer community, we have composed an online survey to learn more about the frequently asked questions and concerns raised by patients, and thoughts on the role health care professionals play in providing information to their patients. It only takes about ten minutes, so if you are a physician, nurse, social worker, patient naviator, or psychosocial care professional, please give us your valuable feedback!  Take the survey now by clicking here:  !

HCP Educational Opportunities:
 NCONN LogoCLRC Director, Joanna Morales will   speak on "Navigating Cancer Legal Resources" at the National Coalition of Oncology Nurse Navigators 3rd Annual Conference on September 9-11, 2011.
For more information, visit:


Join Cancer and Careers on November 17, 2011, from 3-4pm EST for their Fall Educational Series for Healthcare Professionals "Session 3: Legal and Insurance Issues to Consider." Learn how to advise your patients at Cancer and Careers' free series of teleconferences​/webinars designed just for healthcare professionals. CEUs available. Registration information is coming soon and will be posted at ..

2011 Conference Logo Vertical
 Earn FREE CEUs at the 2011 Cancer Rights Conferences!
The CLRC will host three Cancer Rights Conferences on September 23 in Washington, D.C., and October 21 in Ann Arbor, MI. Space is limited.  Register for FREE today at

Updates For Attorneys

Legal Scale IconJoin the CLRC Professional Panel! 
attorneys nationwide have made the commitment to help people navigate their cancer-related legal concerns. A volunteer attorney can make the difference!  To learn more about the CLRC's Professional Panel and to sign-up today, click here: 

HealthLaw_horz_blueEarn Free CLE at the CLRC's 2011 Cancer Rights Conferences! 
The American Bar Association Health Law Section is the official CLE Sponsor for the 2011 Cancer Rights Conferences.  The CLRC has secured the following continuing legal education credit for the Conferences:

Disability Rights Legal Center is an approved provider of continuing legal education (Provider #9969). California attorneys will receive 7 hours of CLE general credit.

This conference has been approved by the Arkansas Continuing Legal Education Board for 6.75 hours of CLE credit, the Illinois Minimum Continuing Legal Education Board for 7 hours of CLE credit, the Indiana Commission for Continuing Legal Education for 7 hours of CLE credit, the Iowa Commission on Continuing Legal Education for 6.75 hours of CLE credit, the Maine Board of Overseers of the Bar for 6.75 hours of CLE, the Mississippi Commission on Continuing Legal Education for 6.8 hours of CLE, the Missouri Bar MCLE Department for 6.8 hours of CLE credit, the State Bar of Nevada Continuing Legal Education Department for 6.5 hours of CLE credit, the North Carolina State Bar Board of Continuing Legal Education for 6.75 hours of CLE credit, the Supreme Court of Ohio for 6.75 hours of CLE credit, the Pennsylvania Continuing Legal Education Board for 6.5 hours of CLE credit, the Vermont Judiciary Mandatory Continuing Legal Education for 6.75 hours of CLE credit, the Virginia State Bar Mandatory Continuing Legal Education Board for 7 hours of CLE credit, and the Wisconsin Board of Bar Examiners for 9.5 hours of CLE credit.

CLRC Thanks Chicago Cancer Rights Conference Session Sponsor: Lotus Blossom Consulting!
     LotusBlossom Ad

About the CLRCCLRC Logo 2010
The Cancer Legal Resource Center (CLRC) is a national, joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles. The CLRC provides free and confidential information and resources on cancer-related legal issues to cancer survivors, caregivers, healthcare professionals, employers, and others coping with cancer.

A cancer diagnosis can carry with it a variety of legal issues, including insurance coverage, employment discrimination, access to health care, and estate planning. These legal issues can cause people unnecessary worry, confusion, and stress, and can be overwhelming. When these legal issues are not addressed, people may find that although they have gotten through treatment, they have lost their homes, jobs, or insurance.
Since its founding in 1997, the CLRC remains unique, providing invaluable cancer-related legal information and resources to people nationwide. Throughout its 14-year history, the CLRC has served over 235,000 people through the Telephone Assistance Line (866-THE-CLRC), Cancer Rights Conferences, seminars, clinics, outreach programs, and other cancer community activities.
The CLRC is funded by grants and donations and the Combined Federal Campaign is a great way to donate to the CLRC. If you are a federal employee, please consider participating in this campaign and donating to the Disability Rights Legal Center, CFC #30555. State employee campaigns will also find us under Disability Rights Legal Center.
Visit for more information about cancer-related legal issues and services provided by the Cancer Legal Resource Center.
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